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Glycogen Storage Diseases and Other Inherited Disorders of Carbohydrate Metabolism

Chapter 430 | Part 12: Endocrinology and Metabolism · Part 12 – Endocrinology & Metabolism · Chapter 430


Key Clinical Points

  1. GSDs are classified by deficient enzyme, organ involvement (liver vs. muscle), and clinical phenotype.
  2. GSD I (Von Gierke) presents with doll-like facies, hepatomegaly, renomegaly, hypoketotic hypoglycemia, lactic acidosis, hyperuricemia, and hyperlipidemia.
  3. GSD II (Pompe) is a lysosomal acid α-glucosidase deficiency; infantile form causes fatal cardiomyopathy within 2 years; late-onset involves progressive muscle weakness.
  4. GSD III (Cori/Forbes) differs from GSD I by having normal lactate and uric acid levels; features include hepatomegaly, muscle weakness, and cardiomyopathy.
  5. GSD V (McArdle) is a muscle phosphorylase deficiency characterized by exercise intolerance, myalgia, cramps, myoglobinuria, and the 'second wind' phenomenon.
  6. GSD IV (Andersen) involves branching enzyme deficiency leading to polyglucosan accumulation; can present as severe hepatic failure or adult-onset polyglucosan body disease (APBD).
  7. Galactosemia Type I (GALT deficiency) presents with vomiting, jaundice, and cataracts; the Duarte variant is asymptomatic.
  8. Hereditary fructose intolerance (Aldolase B deficiency) causes postprandial hypoglycemia, vomiting, and an aversion to sweets.
  9. Management includes avoiding fasting, frequent feedings, uncooked cornstarch supplementation, ERT for GSD II, and liver transplant for severe hepatic cases.
  10. Complications include hepatocellular adenoma (HCA), cardiomyopathy, renal failure, and pulmonary hypertension.

1. DEFINITION & OVERVIEW

Glycogen Structure: Tree-like molecule of glucose residues. ◦ Joined by α-1,4 linkages (straight chains). ◦ Branched at intervals of 4–10 residues by α-1,6 linkages. • Definition: Inherited defects in glycogen metabolism are referred to as glycogen storage diseases (GSDs), also referred to as glycogenoses. • Classification Criteria: Based on primary organ involvement (liver or muscle) and clinical manifestations. • Prevalence: 1 in 10,000 to 1 in 25,000 live births. ◦ Mostly autosomal recessive; some X-linked or autosomal dominant. • Clinical Scope: Includes GSD I, II, III, IV, VI, IX (liver) and V, VII, X, XI, XII, XIII, XV (muscle), as well as galactose and fructose metabolism disorders.


2. EPIDEMIOLOGY

General Prevalence: 1 in 10,000 to 1 in 25,000 live births. • Inheritance Patterns: Mostly autosomal recessive; some X-linked or autosomal dominant. • Population-Specific Clusters: ◦ GSD IV (APBD): Higher prevalence in individuals of Ashkenazi Jewish ancestry. ◦ GSD VI: Higher prevalence in the Mennonite community. ◦ GSD VII: Prevalence in individuals of Ashkenazi Jewish ancestry. ◦ Clinical variant galactosemia: Common in African Americans and native South Africans. ◦ GSD X: Higher incidence in African Americans.


3. ETIOLOGY & PATHOPHYSIOLOGY

3.1 Liver Glycogen Storage Diseases

GSD Type I (Von Gierke): Glucose-6-phosphatase or translocase deficiency. ◦ Type Ia: Glucose-6-phosphatase enzyme defective; leads to hypoketotic hypoglycemia, lactic acidosis, hyperuricemia, and hyperlipidemia. ◦ Type Ib: Translocase (G6P transport into ER) defective; additional findings of neutropenia and inflammatory bowel disease. • GSD Type III (Cori/Forbes): Debranching enzyme deficiency. ◦ GSD IIIa: Liver, cardiac, and skeletal muscle involvement (~85%). ◦ GSD IIIb: Primarily liver involvement (~15%). • GSD Type IV (Andersen): Branching enzyme deficiency → accumulation of polyglucosan. ◦ Hepatic form: Rapid progression to liver failure; some cases progress to extrahepatic involvement (myopathy, cardiomyopathy). ◦ Adult Polyglucosan Body Disease (APBD): Progressive lower limb weakness and spasticity. • GSD Type VI (Hers): Liver phosphorylase deficiency; often associated with liver fibrosis and hyperlipidemia. • GSD Type IX: Phosphorylase kinase (PhK) deficiency. ◦ α2: X-linked (PHKA2); common in males. ◦ γ2: Often more severe clinical phenotype. ◦ β: Includes liver and muscle; catch-up growth is common. • GSD 0a: Glycogen synthase 2 (GYS2) deficiency; rare, no hepatomegaly, ketotic hypoglycemia. • Fanconi-Bickel Syndrome: GLUT-2 transporter deficiency; affects liver, pancreas, intestine, and kidney; presents with rickets and renal issues.

3.2 Muscle Glycogen Storage Diseases

GSD Type II (Pompe): Lysosomal acid α-glucosidase deficiency. ◦ Accumulation of glycogen in lysosomes. ◦ Infantile-onset: Fatal within 2 years; cardiomyopathy, macroglossia. ◦ Late-onset: Muscle weakness starting in first year; respiratory involvement. • GSD Type V (McArdle): Muscle phosphorylase deficiency; 'second wind' phenomenon. • GSD Type VII (Tarui): Phosphofructokinase-M subunit deficiency; 'out of wind' phenomenon; associated with hemolysis and hyperuricemia. • Other Muscle GSDs: ◦ GSD IX α1: Phosphorylase kinase (muscle) deficiency. ◦ GSD X: Phosphoglycerate mutase 2 deficiency. ◦ GSD XI: Lactate dehydrogenase A deficiency. ◦ GSD XII: Aldolase A deficiency; associated with hemolytic anemia. ◦ GSD XIII: β-enolase deficiency. ◦ GSD XV: Glycogenin-1 deficiency (Polyglucosan body myopathy). • LMBR1 Deficiency: Lysosomal-associated membrane protein 2; severe cardiomyopathy and myopathy.

Galactosemia Type I: GALT deficiency → vomiting, jaundice, sepsis, cataracts. ◦ Clinical variant: Less severe; homozygous p.Ser135Leu variants. ◦ Duarte variant: Asymptomatic. • Galactokinase (GALK) Deficiency: Cataracts and pseudotumor cerebri. • Uridine diphosphate galactose-4-epimerase (GALE) Deficiency: Similar to Type I; additional hypotonia and hearing loss. • Galactose mutarotase (GALM) Deficiency: Cataracts; mild.

3.4 Fructose Metabolism Disorders

Hereditary Fructose Intolerance: Aldolase B deficiency → vomiting, jaundice, hepatomegaly, aversion to sweets, and postprandial hypoglycemia.


4. CLINICAL FEATURES

4.1 GSD Type I (Von Gierke)

Presentation: Hepatomegaly, renomegaly, doll-like facies, and short stature. ◦ Metabolic: Hypoketotic hypoglycemia, lactic acidosis, hyperuricemia, and hyperlipidemia. ◦ Other: Hepatic steatosis; prolonged bleeding time.

4.2 GSD Type II (Pompe)

Infantile-onset: Hypotonia, muscle weakness, cardiomyopathy, macroglossia; fatal within 2 years. ◦ Late-onset: Muscle weakness starting in first year; respiratory involvement (diaphragm).

4.3 GSD Type III (Cori/Forbes)

Childhood: Fasting hypoglycemia, hepatomegaly, muscle weakness, cardiomyopathy. ◦ Adulthood: Liver fibrosis/cirrhosis; proximal and distal muscle atrophy; peripheral neuropathy.

4.4 GSD Type IV (Andersen)

Hepatic Form: Failure to thrive, hepatomegaly, progressive liver failure. ◦ Neuromuscular Form: Myopathy, cardiomyopathy. ◦ APBD: Progressive lower limb weakness and spasticity.

4.5 GSD Type V (McArdle)

Symptoms: Exercise intolerance, myalgia, cramps, myoglobinuria. ◦ Key Sign: 'Second wind' phenomenon during exercise.

4.6 GSD Type VI & IX

Type VI (Hers): Hepatomegaly, liver fibrosis, hyperlipidemia; common in Mennonite community. ◦ Type IX: Phenotype varies by subunit (α2, γ2, β); includes hepatomegaly and muscle weakness.


5. DIFFERENTIAL DIAGNOSIS

5.1 Hypoglycemia Workup

Differentiation: Distinguish GSD types based on metabolic markers. ◦ GSD I vs. GSD III: GSD I has high lactate/uric acid; GSD III has normal levels.

5.2 Muscle vs. Liver GSD

Clinical Distinction: Muscle-specific symptoms (myalgia, myoglobinuria) vs. liver-specific symptoms (hepatomegaly, hyperlipidemia).


6. INVESTIGATIONS & DIAGNOSIS

6.1 Diagnostic Criteria

Biochemical Markers: Glucose, lactate, uric acid, and triglycerides. ◦ High Lactate + High Uric Acid → Suggests GSD I. ◦ Normal Lactate + Normal Uric Acid + Hepatomegaly → Suggests GSD III.

6.2 Diagnostic Algorithm

  1. Clinical Assessment: Identify primary organ involvement (Liver vs. Muscle) and age of onset.
  2. Biochemical Screening: Measure glucose, lactate, uric acid, and triglycerides to differentiate GSD types.
  3. Confirmatory Testing: Genetic testing (DNA sequencing, panels, or whole exome/genome sequencing) to identify specific enzyme deficiency.

7. MANAGEMENT & TREATMENT

7.1 Pharmacologic Therapy

Enzyme Replacement Therapy (ERT): Specifically for GSD II.

7.2 Surgical & Procedural Therapy

Liver Transplant: For severe hepatic GSDs (e.g., GSD I, IV).

7.3 Dietary Management

  1. Fast Prevention: Avoid fasting periods.
  2. Feeding Schedule: Frequent feedings.
  3. Supplementation: Uncooked cornstarch supplementation.

8. PROGNOSIS & COMPLICATIONS

8.1 Hepatic Complications

Tumors: Hepatocellular adenoma (HCA) and carcinoma (HCC). ◦ Liver Disease: Fibrosis, cirrhosis, liver failure.

8.2 Muscular Complications

Cardiac: Cardiomyopathy, heart failure. ◦ Skeletal: Myopathy, muscle atrophy, respiratory failure.

8.3 Metabolic Complications

Renal: Renal stones, hyperfiltration injury, renal failure. ◦ Systemic: Gout, hyperlipidemia, pulmonary hypertension.


9. SPECIAL CONSIDERATIONS

Ashkenazi Jewish: Higher prevalence of GSD IV (APBD) and GSD VII. • Mennonite Community: Higher prevalence of GSD VI. • African American / Native South African: Common for Clinical variant galactosemia. • African American: Higher incidence of GSD X.


10. KEY PEARLS & CLINICAL TRAPS

GSD I vs. III: Key differentiator is the presence/absence of lactic acidosis and hyperuricemia. • GSD V vs. VII: 'Second wind' (GSD V) vs. 'Out of wind' (GSD VII). • Galactose Disorders: Duarte variant is asymptomatic; Galactokinase deficiency causes cataracts. • Fructose Disorders: Hereditary fructose intolerance presents with postprandial hypoglycemia. • GSD II: Only GSD involving lysosomal accumulation; requires ERT.


Reference Tables

TABLE 430-1 Features of Glycogen Storage Diseases, Galactose Metabolism Disorders, and Fructose Metabolism Disorders…

Harrison's 22e, p.3361

TYPE EPONYM DEFICIENT ENZYME CLINICAL FEATURES COMMENTS
Muscle Glycogen Storage Diseases
Glycogen synthase 1 Cardiomyopathy, cardiac arrythmia, muscle
weakness, exercise intolerance
II Pompe Lysosomal acid
α-glucosidase
Classic infantile-onset: Hypotonia, muscle
weakness, cardiomyopathy, fatal within first 2 years
of life
Nonclassic infantile-onset: Presentation within first
year of life with less severe cardiomyopathy and
slower progression than the classic form
Late-onset: Absence of cardiomyopathy in first
year of life; kinematic/muscle weakness noted
as early as first year of life, progressive skeletal
muscle weakness, early involvement of proximal
lower extremity muscles and respiratory muscles,
especially the diaphragm
Higher frequency being reported since advent
of newborn screening; enzyme (GAA) levels
are undetectable or very low in infantile-onset
form and variable in late-onset form when
measured in skin or muscle
McArdle Muscle phosphorylase Exercise intolerance, myalgia, cramps,
myoglobinuria with strenuous exercise, increased
CK levels; “second wind” phenomenon
VII Tarui Phosphofructokinase-M
subunit
As for type V, with additional findings of
compensated hemolysis, hyperuricemia; “out of
wind” phenomenon rather than “second wind”
phenomenon observed in GSD V
Rare, prevalent in individuals of Ashkenazi
Jewish ancestry
Phosphorylase kinase
(muscle)
Exercise intolerance, myalgia, cramps, muscle
weakness and atrophy, myoglobinuria with
strenuous exercise
X Phosphoglycerate
mutase 2
Exercise intolerance, cramps, myoglobinuria with
strenuous exercise
Rare, most patients African American
Lactate dehydrogenase A Exercise intolerance, cramps, myoglobinuria with
strenuous exercise, dermatitis
XII Aldolase A Muscle weakness, myoglobinuria with strenuous
exercise, with additional finding of hemolytic anemia
Rare
β-enolase Exercise intolerance, myalgia, cramps,
myoglobinuria with strenuous exercise
XV (also known as
polyglucosan body
myopathy 2)
Glycogenin-1 Often classified as two subtypes:
GSD XV: Progressive cardiac arrhythmia and/
or cardiomyopathy causing heart failure and
necessitating cardiac transplantation in some cases
Polyglucosan body myopathy 2: Progressive
myopathy with proximal and distal muscle weakness
Rare
Lysosomal-associated
membrane protein 2
Severe progressive cardiomyopathy with
WPW pattern progressing to heart failure,
cardiac arrythmia, and heart failure in early
childhood/adolescence; myopathy with muscle
weakness, retinopathy, intellectual disability, and
developmental delay
PRKAG2 deficiency AMP-activated gamma 2
protein kinase
Progressive cardiac arrhythmia and cardiomyopathy
progressing to heart failure in childhood to adulthood;
congenital/infantile form is rapidly fatal with
hypertrophic cardiomyopathy with WPW pattern;
other involvement includes myalgia and seizures
Autosomal dominant
Galactose Metabolism Disorders
Galactose-1-phosphate
uridyltransferase (GALT)
Vomiting, jaundice, sepsis, cataracts, aminoaciduria,
hepatomegaly, failure to thrive
Clinical variant
galactosemia
Less severe disease course compared to
classic galactosemia; caused by homozygous
p.Ser135Leu variants, most common in African
Americans and native South Africans
Duarte Galactose-1-phosphate
uridyltransferase (GALT)
Asymptomatic
II Galactokinase (GALK) Cataracts and pseudotumor cerebri Clinical continuum with very mild to severe
phenotype
Uridine diphosphate
galactose-4-epimerase
(GALE)
Similar to galactosemia type I; additional findings of
hypotonia and hearing loss
IV Galactose mutarotase
(GALM)
Cataracts Identified in Japan; considered to be mild