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Amyotrophic Lateral Sclerosis and Other Motor Neuron Diseases

Chapter 448 | Part 13: Neurologic Disorders · Part 13 – Neurologic Disorders · Chapter 448


Key Clinical Points

  1. ALS is defined by the simultaneous involvement of upper motor neurons (UMN) and lower motor neurons (LMN).
  2. Median survival is 3 to 5 years, with death typically resulting from respiratory paralysis.
  3. C9orf72 mutations are a major genetic driver, accounting for ~45–50% of familial ALS (FALS).
  4. Riluzole (100 mg/d) modestly extends survival; Edaravone slows the rate of progression on disability scales.
  5. Sensory, bowel, bladder, and ocular motility are typically preserved in ALS.
  6. MRI may show high signal intensity in corticospinal tracts (Wallerian degeneration).
  7. Multifocal motor neuropathy with conduction block (MMCB) must be excluded as it is treatable.
  8. Kennedy's disease (X-linked) presents with gynecomastia and reduced fertility, distinguishing it from ALS.
  9. Tofersen is specifically indicated for SOD1-mediated ALS via intrathecal delivery.
  10. Absence of pain or sensory changes favors a diagnosis of ALS.

DEFINITION & CLASSIFICATION

Definition (Harrison's 22e): Amyotrophic lateral sclerosis (ALS) is the most common progressive motor neuron disease.Pathologic Hallmark: Death of both lower motor neurons (LMN) and upper motor neurons (UMN). • LMN Component: Includes anterior horn cells in the spinal cord and their brainstem homologues. • UMN Component: Corticospinal motor neurons originating in layer five of the motor cortex. • Clinical Progression: While ALS may start with only one type of neuron involved, it ultimately results in the progressive loss of both. • Preserved Functions: Sensory, bowel, bladder, and ocular motility (until very late stages) are typically spared.

Functional (Psychogenic) Disorders

Definition: Also known as functional neurologic symptom disorder (FND) or conversion disorder. • Prevalence: Estimated at 2–13% of patients in movement disorder clinics; more common in women. • Clinical Features: Can present as tremor, tics, dystonia, myoclonus, chorea, ballism, and parkinsonism. • Management: Education/explanation of diagnosis; primary treatment is psychological (e.g., cognitive-behavioral therapy) combined with physiotherapy.

Pathology

Cellular Changes: Motor neurons undergo shrinkage and accumulation of lipofuscin. • Cytoskeleton: Early involvement of the motor neuron cytoskeleton; formation of 'spheroids' (neurofilament/protein accumulations) in proximal motor axons. • Protein Aggregates: Ubiquitin-positive aggregates, often associated with TDP43. • Neuroinflammation: Proliferation of astroglia and microglia. • Muscle Changes: Denervation leads to atrophy; early stages may show reinnervation by sprouting. • Sclerosis: Loss of corticospinal neurons results in thinning of tracts and fibrillary gliosis (lateral sclerosis).


EPIDEMIOLOGY

Survival: Median survival is 3 to 5 years. • Progression: Rarely reported cases of stabilization or regression. • Mortality: Approximately 1 in 500 deaths in North America and Western Europe are due to ALS; death usually results from respiratory paralysis. • Incidence/Prevalence: Incidence of 1–3 per 100,000; prevalence of 3–5 per 100,000. • Demographics: Men are more frequently affected than women in the US and Europe. • Risk Factors: Potential links to pesticides/insecticides, silica, smoking, and military service. • Genetics: ~10% of cases are inherited as an autosomal dominant trait.


ETIOLOGY & PATHOPHYISIOLOGY

General Pathogenesis: Complex process involving excitotoxicity, defective autophagy, impaired axonal transport, oxidative stress, and mitochondrial dysfunction. • Genetic Categories of ALS: 1. Protein Instability: Mutations in SOD1, ubiquilin-1/2, and p62 lead to perturbations in protein degradation. 2. RNA Processing/Transport: Mutations in C9orf73, TDP43, and FUS/TLS; C9orf72 involves an intronic hexanucleotide repeat expansion (>-30 repeats) causing translation of toxic dipeptides. 3. Axonal Cytoskeleton/Transport: Mutations in dynactin and profilin-1. • Nonneuronal Involvement: Activated microglia and astrocytes significantly influence disease course.

Familial ALS (FALS)

Clinical Status: Clinically indistinguishable from sporadic ALS. • C9orf72: Accounts for ~45–50% of FALS and 5–10% of sporadic cases. • SOD1: Accounts for ~20% of FALS. • TDP43 & FUS/TLS: Each account for ~5% of FALS. • Other Genes: NEK1, optineurin, TBK1, KIF5A, TUBA4, PFN1 (each ~1%). • Special Cases: Senataxin (slowly evolving variant); Kennedy's syndrome (X-linked; mimics ALS but involves androgen receptor). • ALS/FTD Link: Over 40% of frontotemporal dementia (FTD) cases harbor C9orf72 mutations.


CLINICAL FEATURES

LMN Dysfunction: ◦ Initial presentation: Insidiously developing asymmetric weakness, typically distal. ◦ Cramping: Often occurs with volitional movements in the early morning. ◦ Fasciculations: Spontaneous twitching of motor units (early sign). ◦ Hand involvement: Predominance of extensor over flexor weakness. • UMN Involvement: ◦ Hyperreflexia: Hyperactivity of muscle-stretch reflexes. ◦ Spasticity: Resistance to passive movements; stiffness often out of proportion to weakness. • Bulbar & Respiratory Symptoms: ◦ Bulbar: Difficulty with chewing, swallowing, and facial/tongue movement; dysarthria. ◦ Pseudobulbar affect: Involuntary excess in weeping or laughing. ◦ Respiratory: Early involvement can lead to death before other symptoms progress. • Progression: Moves from asymmetric to symmetric distribution across all muscle groups. • Preserved Functions: Sensory, bowel, bladder, and cognitive functions (except in cases with concurrent FTD). • Ocular Motility: Spared until very late stages.

Familial ALS (FALS) Characteristics

Inheritance: Autosomal dominant. • Clinical Presentation: Identical to sporadic ALS. • Associated Disorders: Frequently co-occurs with Frontotemporal Dementia (FTD), especially in C9orf72 mutations. • Atypical Phenotypes: Some cases show prominent amyotrophy with parkinsonism-like features (linked to tau protein mutations).


DIFFERENTIAL DIAGNOSIS

Rule Out Treatable Causes (Table 448-1):Structural Lesions: Cervical spinal cord/foramen magnum tumors, spondylosis, or Chiari malformation. ◦ Neuropathies: Multifocal motor neuropathy with conduction block (MMCB), motor neuropathy with paraproteinemia/cancer, and other peripheral neuropathies. ◦ Toxins/Drugs: Lead, aluminum, strychnine, phenytoin; exposure to electricity or x-irradiation. • Infectious/Inflammatory: Lyme disease (usually presents with pain/pleocytosis), viral infections (Poliomyelitis, West Nile). • Metabolic/Systemic: Hyperthyroidism, vitamin deficiencies (B12, E, folate), copper/zinc deficiency, mitochondrial dysfunction. • Specific Mimics:Kennedy's Disease: X-linked; presents with gynecomastia and reduced fertility. ◦ Benign Fasciculations: No weakness or atrophy present; excludes ALS. ◦ Chronic Traumatic Encephalopathy: Associated with TDP43 and neurofibrillary tangles.

Diagnostic Criteria for ALS

Favoring ALS: ◦ Absence of pain or sensory changes. ◦ Normal bowel and bladder function. ◦ Normal radiologic studies of the spine. ◦ Normal CSF analysis. • Exclusionary Findings: ◦ Presence of motor neuronal conduction block (indicates MMCB). ◦ Evidence of involvement of non-motor neurons. ◦ Restriction to only UMN or only LMN.


DIAGNOSTIC APPROACH

  1. Initial Clinical Assessment: Identify asymmetric weakness, hyperreflexia, and fasciculations; assess for bulbar symptoms.
  2. Rule Out Treatable Conditions (Table 448-1): ◦ Perform MRI of head/cervical spine to rule out structural lesions (tumors, spondylosis). ◦ Order serum lead levels and 24-h urine for heavy metals if exposure is suspected. ◦ Check thyroid function, vitamin levels, and metabolic panels.
  3. Electrophysiology: Perform studies to identify motor neuron conduction block; presence of block suggests MMCB rather than ALS.
  4. Genetic Testing: If family history is positive or C9orf72/SOD1 are suspected, perform a panel for ALS and FTD genes.
  5. Neuropsychological Testing: Assess for cognitive impairment (common in ~15% of cases; higher in C9orf72 mutations).

MANAGEMENT & TREATMENT

  1. Pharmacologic Therapy:Riluzole: Dose: 100 mg/d. Effect: Modestly lengthens survival. ◦ Edaravone: Use to reduce the trajectory of worsening on disability scales. ◦ Tofersen: Indicated for SOD1-mediated ALS; administered via intrathecal delivery to suppress mutant SOD1 expression.
  2. Supportive Care:Respiratory Support: Management of respiratory failure (primary cause of death). ◦ Rehabilitative Aids: Implementation of assistive devices and physical therapy.
  3. Monitoring: ◦ Monitor for progression of bulbar symptoms and respiratory decline. ◦ Assess for development of pseudobulbar affect or cognitive changes.

PROGNOSIS & COMPLICATIONS

Survival: Median 3–5 years; death usually from respiratory failure. • Complications: ◦ Respiratory paralysis. ◦ Dysphagia (difficulty swallowing) and aspiration risk. ◦ Pseudobulbar affect. ◦ Cognitive decline/Frontotemporal Dementia (especially in C9orf72 cases).


SPECIAL POPULATIONS

Familial Cases: Higher likelihood of concurrent FTD; specific genetic targets (SOD1, C9orf72). ◦ Pediatric/Juvenile: Mutations in KIF5A or ALSIN may cause early-onset motor neuron disease. ◦ Traumatic Injury: Chronic traumatic encephalopathy can present with ALS-like features.


KEY PEARLS & HIGH-YIELD POINTS

The "Rule of Two": ALS requires both UMN and LMN involvement; if only one is present, look for mimics. ◦ MMCB: If conduction block is present, it is likely MMCB (treatable with IVIG/chemotherapy). ◦ C9orf72: The most common genetic cause of FALS (~45-50%). ◦ Preservation: Sensory, bowel, and bladder functions are almost always preserved. ◦ Tofersen: Specifically for SOD1 mutations. ◦ Lead/Thyroid: Always rule out these treatable causes in patients with motor neuron symptoms.


Reference Tables

TABLE 448-2 Sporadic Motor Neuron Diseases CHRONIC Upper and lower motor neuron Predominantly upper motor neuron…

Harrison's 22e, p.3520

DIAGNOSTIC CATEGORY INVESTIGATION
Structural lesions
Parasagittal or foramen magnum
tumors
Cervical spondylosis
Chiari malformation of syrinx
Spinal cord arteriovenous
malformation
MRI scan of head (including foramen
magnum and cervical spine)

TABLE 448-2 Sporadic Motor Neuron Diseases

CHRONIC ENTITY
Upper and lower motor neuron Amyotrophic lateral sclerosis
Predominantly lower motor neuron Multifocal motor neuropathy with
conduction block
Motor neuropathy with
paraproteinemia or cancer
Motor predominant peripheral
neuropathies
Other
Intoxications, physical agents
Toxins—lead, aluminum, others
Drugs—strychnine, phenytoin
Electric short, x-irradiation
24-h urine for heavy metals
Serum lead level

Table 448-1) Acute Poliomyelitis Herpes zoster Coxsackie virus West Nile virus

Harrison's 22e, p.3520

Acute
Poliomyelitis
Herpes zoster
Coxsackie virus
West Nile virus
Metabolic
Hypoglycemia
Hyperparathyroidism
Hyperthyroidism
D eficiency of folate, vitamin B ,
12
vitamin E
Malabsorption
Deficiency of copper, zinc
Mitochondrial dysfunction
Fasting blood sugara
Routine chemistries including calciuma
PTH
Thyroid functiona
Vitamin B , vitamin E, folatea
12
Serum zinc, coppera
24-h stool fat, carotene, prothrombin time
Fasting lactate, pyruvate, ammonia
Consider mtDNA
Hyperglycinuria Urine and serum amino acids
CSF amino acids

TABLE 448-3 Genetic Motor Neuron Diseases DISEASE I. Selected Upper and Lower Motor Neurons (Familial ALS) +…

Harrison's 22e, p.3522

DISEASE GENE
SYMBOL
GENE NAME INHERITANCE U.S. FREQUENCY
% FALS
USUAL ONSET PROTEIN FUNCTION UNUSUAL FEATURES
I. Selected Upper and Lower Motor Neurons (Familial ALS) + Frontotemporal Dementia (FTD)
C9ORF72 Chromosome 9 open
reading frame 72
AD 45% (6–10% SALS) Adult Regulates vesicle
trafficking
ALS SOD1 Cu/Zn superoxide
dismutase 1
AD 20% (2% SALS) Adult Protein antioxidant
TARDBP TAR DNA binding
protein
AD 5% Adult DNA, RNA binding
ALS/ALS-FTD FUS/TLS Fused in sarcoma/
translocated in
liposarcoma
AD 5% Adult DNA, RNA binding
CCNF E3 ubiquitin ligase
cyclin F
AD 2% Adult Mediates
ubiquitination
ALS NEK1 NMA-related kinase AR 2% Adult Microtubules,
nuclear transport
TBK1 Tank binding kinase 1 AD 2% Adult Regulates autophagy,
inflammation
ALS KIF5A Kinesin family member
5A
AD 1–2% Early adult Microtubule motor CMT
PFN1 Profilin 1 AD ~1% Adult Involved in actin
polymerization
ALS/ALS-FTD OPTN Optineurin AD/AR ~1% Adult Attenuates NF-κB
SPG11 Spastic paraplegia 11 AR ~1% Adult Vesicle trafficking
ALS SETX Senataxin AD ~1% Late juvenile DNA helicase Late childhood onset
VCP Valosin-containing
protein
AD ~ 1% Adult ATPase
ALS-FTD UBQLN2 Ubiquilin 2 XR <1% Adult or
juvenile
Protein degradation
CHMP2B Chromatin modifying
protein 2B
AD <1% Adult Chromatin binding
protein
ALS-FTD MAPT Microtubule
Associated Protein Tau
AD <1% Adult Cytoskeletal protein Usually causes only FTD
ALS2 Alsin AR <1% Juvenile GEF signaling
ALS-FTD CHMP2B Chromatin modifying
protein 2B
AD <1% Adult Chromatin binding
protein
Spinal muscular
atrophies
SMN Survival motor neuron AR 1/10,000 live births Infancy RNA metabolism
HEXB Hexosaminidase B AR Childhood Ganglioside recycling
GM2A GM2-activator protein AR Childhood Ganglioside recycling
HEXA Hexosaminidase A AR Childhood Ganglioside recycling
X-linked spinobulbar
muscular atrophy
AR Androgen receptor XR Adult Nuclear signaling
SPG3A ATL1 Atlastin AD 10% AD FSP Childhood GTPase—vesicle
recycling
SPAST Spastin AD 50–60% AD FSP Early adulthood ATPase family—
microtubule
associate
SPG10 KIF5A Kinesin heavy chain
isoform 5A
AD 10% AD FSP Second–third
decade
Motor-associated
protein
± Peripheral neuropathy,
retardation
REEP1 Receptor Expression
Enhancing Protein 1
AD 10% AD FSP Early Mitochondrial protein
SPG5 CYP7B1 Cytochrome P450 AR 5–10% AR FSP Variable Degrades
endogenous
substances
Sensory loss
SPG7 Paraplegin AR 5–10% AR FSP Variable Mitochondrial protein